OK-SAFE, Inc. recently had the opportunity to interview Dr. Deborah C. Peel, founder and Chair of Patient Privacy Rights, a non-profit organization formed in 2004 to promote patient privacy and the protection of personally identifiable health information. (patientprivacyrights.org).
Dr. Peel is also supporting the 2nd Annual International Summit on the Future of Health Privacy, to be held June 6-7, 2012 at the Georgetown Law Center in Washington, D.C.
This summit is free, and will be available via live-streaming if you cannot travel to D.C. for this important event.
Follow this link to the 3/14/12 America in the Balance interview:
- We live in a “digital universe” – everything you do online leaves a digital trail
- Everything you do online is valuable to someone - including gaining access to your Social Security number
- The most valuable information is any kind of health information – this information sells for more
- Health information is bought and sold online – including your personal prescription information
- Electronic health records – pharmacies, hospitals, and labs sell the information. Generally, it is sold for two reasons – 1) to sell you a product, and/or 2) to sell profiles of you to various purchasers – from drug companies, to health insurers, or for business analytics information
- Despite the laws that says employers are not supposed to discriminate based on health information – they do.
- Genetic bias is not supposed to take place – but it does
- Paper records did not cause health information to be leaked out – only when a third party was brought into the picture via electronic means did personal health information leak out.
- This electronic health information system is dangerous – not only to us, but to our children and their future.
- Quote: “Your diagnosis and your genes do not tell us how you will live and what your life will be like.”
- HIPPA is not about protecting your privacy – in fact, patients really don’t have any privacy rights.
- There are problems with “mHealth”, or mobile health, i.e. the use of Smartphones, I-pads, etc.- to view personal health information Currently, this information is not encrypted, nor is there a way to control the access to it.
- The Health Information Exchanges mean any party to the exchange can pull your information before you get to your provider.
Although people may not have a way to opt out of all health information sharing systems, there is a Consent Form form available on the Patient Privacy Rights website, that you may like to print out and share with your health care provider to try to minimize the likelihood of your personal health information being shared.
Link to Consent Form on PPR site: http://patientprivacyrights.org/media/Consent_Form.pdf
Listen to the entire 3/14/12 interview on Truth in Focus radio:
This is probably one of the most important rights issues we are facing today.